Every year near the end of February, Rare Disease Day honors the 30 million people in the US who have 10,000+ rare medical conditions, and those who support them. Events bring the patient, scientific, regulatory, and clinical communities together, to share and discuss novel hypotheses, new data, tentative conclusions, and hands-on information about living with the diseases.
Exciting interactions arise at rare disease conferences, at local, national, and international levels.
According to the National Organization for Rare Disorders from 2023, "February 28 has grown into an essential annual celebration to engage the community, elevate the stories of patients and families, drive donations, and advance critical resources and innovative research for rare diseases. To learn more and find ways to get involved, visit rarediseaseday.us. Every year, February 28 is "A Day to be Heard."
To continue reading, go to DNA Science, where this post first appeared.